4th June 2008 - Joe Way's website goes live!!!

The website is going live on Wednesday 4th June four weeks to the day that 4 year old Joe Way died.

His web page is www.joeway.co.uk (live from Wednesday)

Joe is the inspirational little boy who touched people’s lives around the country and beyond.

His story of hope and fighting against all the odds with a cheeky smile has made what could of been the worse of times the best of times.

His story continues to inspire individuals and business to donate funds to The Precious Lives Appeal to build a children’s hospice in Cornwall.

We have since his funeral received over £3000 in Donations. Joe was always too ill to travel to Devon to stay at the hospice which is why we are supporting the need for this facility in Cornwall.

Our hopes for Joe are to tell his story and promote the symptoms of Angelmans Syndrome, Steven Johnson Syndrome and offer hope to other people who have or know someone who has these conditions

We also want to raise funds for the Precious Lives appeal which help life limited children and their family’s, his website will continue to give hope with Joes amazing story so others may be inspired

At the end of Joes service 200 people let off 150 balloons and received sunflower seeds to plant to remember Joe

1st June 2008 - Hendra Holidays support Precious Lives in Memory of Joe Way

I am sure that most of you will be aware that little Joe Way, our park manager’s son, died peacefully after struggling for four years with a rare disorder. He was a happy little boy who was always smiling, and he brought Matt and Claire and their families a great deal of pleasure. In his memory, Hendra’s chosen charity for 2008 is the Precious Lives Appeal organised by Children’s Hospice South West, a charity dedicated to making the most of short and precious lives in the county. The appeal is raising money to build a much needed hospice in Cornwall which will provide a place close to home for friends and family. We shall be organising various fundraising events throughout the season (I believe staff are already arranging a nice long sponsored bike ride!). Watch this space!

29th MAY CHILDREN'S HOSPICE APPEAL REACHES A LANDMARK £1M

Children's Hospice South West has announced that fund-raising for the Precious Lives Appeal has reached the£1 million mark.

The appeal was launched in September last year to raise money to build a hospice in Cornwall, providing expert care to children with life limiting conditions in Plymouth and Cornwall, as well as support to their families.

Eddie Farwell, co-founder and chief executive of Children's Hospice South West explains his vision: "We are absolutely delighted that we are continually taking steps forward to finally bring this service closer to families in Cornwall and Plymouth.

"Since Jill and I registered the charity in 1991 it had always been our dream to ensure that families, like ours, with life-limiting children who lived in the South West, had the opportunity to benefit from a children's hospice service."

Eddie added: "Reaching the £1m milestone is a real achievement and a giant stepping stone towards achieving our goal. Thank you so much to the many people in Cornwall and Plymouth for their continued support of the appeal - it really is fantastic and we couldn't do it without them."

Children's Hospice South West already has two hospices in the region - Little Bridge House in Barnstaple, Devon, and Charlton Farm in Wraxall, Somerset.

An estimated £5 million is required to build the third hospice. The £1 million raised so far includes the £100,000 raised by BBC Radio Cornwall who launched their £1 appeal, and have participated in fundraising activities in support of the appeal.

Emma Lloyd, appeal manager, is delighted with the progress the appeal is making: "We are thrilled that so many people in Cornwall and Plymouth are behind the appeal. I am so inspired by the many different ways in which local people and businesses have been supporting us and helping to raise the vital funds.

"The £100,000 raised by BBC Radio Cornwall and their listeners has also been a huge boost. It's fantastic that in such a short space of time we are already a fifth of the way to reaching our total."

• The Children's Hospice South West Precious Lives Appeal, to open a new hospice to service the families of Plymouth and Cornwall was launched at the beginning of September 2007.
• About £5m will be required for the build and initial running costs of the new Children's Hospice South West hospice service
• CHSW relies on the generosity of the people of the south west as 95% of its running costs comes from voluntary donations
• CHSW has successfully set up and run Little Bridge House in Devon for more than 12 years
• CHSW has built a second hospice, Charlton Farm in Wraxall, Nr Bristol to meet the demand for its unique and specialist services to children and families in the South West.
• CHSW needs to raise about £6m a year in order run both Little Bridge House in North Devon and Charlton Farm in North Somerset